National PAO • Patient and caregiver support • Practical pathways
Friends of the National Liver Waiting List logo Friends of the National Liver Waiting List Foundation National patient advocacy with operational support

Caregiver Hub

You're carrying a lot — records, phone calls, and logistics, often while someone you love is unwell. This hub gives you a system you can run today.

We help you organize and move when you ask us to. Clinical decisions stay with your transplant team.

Liver Transplant Caregiver Guide & Manual

This is the caregiver's operating manual. It is built to be used, printed, copied, saved, and shared. It is organized by the real situations caregivers face: clinic day, transplant evaluation, ER visits, pre-transplant hospital stays, the waitlist call, transplant admission, discharge, and the first two months after transplant.

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Why getting ready early matters

Caregivers usually hold the records, the phone calls, and the logistics. A system in place before a crisis means fewer delayed calls, more complete records, and more open options — including being ready to move to another transplant center if you ever need to.

Readiness comes down to four things the guide above walks you through: a records packet, a phone matrix, call-day plans, and a contingency plan for local or dual-listed pathways.

Prefer to talk to a person? Open Support Pathways →

What we don't do

  • We don't replace your transplant coordinator or clinical team.
  • We don't provide medical advice or emergency triage.
  • We don't determine transplant candidacy.

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