Caregiver Hub
You're carrying a lot — records, phone calls, and logistics, often while someone you love is unwell. This hub gives you a system you can run today.
We help you organize and move when you ask us to. Clinical decisions stay with your transplant team.
Caregiver guides
Plain-language guides for the people caring for someone with end-stage liver disease, reviewed by our Medical Advisory Board.
Hepatic encephalopathy
Confusion, sleep changes and personality shifts: what they mean and what to do tonight.
Transplant caregiver requirements
What transplant centers ask of a caregiver before and after surgery, and how to plan for it.
Caregiver burnout
The signs, and real help: respite, support groups, and asking for specific help.
End of life
Palliative care, hospice, and what you may see in the final weeks.
The waiting list, for caregivers
A caregiver-first guide to the liver transplant waiting list.
Caregiver questions
Answers to the questions families ask most, by topic.
Liver Transplant Caregiver Guide & Manual
This is the caregiver's operating manual. It is built to be used, printed, copied, saved, and shared. It is organized by the real situations caregivers face: clinic day, transplant evaluation, ER visits, pre-transplant hospital stays, the waitlist call, transplant admission, discharge, and the first two months after transplant.
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Why getting ready early matters
Caregivers usually hold the records, the phone calls, and the logistics. A system in place before a crisis means fewer delayed calls, more complete records, and more open options — including being ready to move to another transplant center if you ever need to.
Readiness comes down to four things the guide above walks you through: a records packet, a phone matrix, call-day plans, and a contingency plan for local or dual-listed pathways.
Prefer to talk to a person? Open Support Pathways →
What we don't do
- We don't replace your transplant coordinator or clinical team.
- We don't provide medical advice or emergency triage.
- We don't determine transplant candidacy.